The Voice of Endo: Leveraging Speech for an Intelligent System That Can Forecast Illness Flare-ups.
Managing complex chronic illness is challenging due to its unpredictability. This paper explores the potential of voice for automated flare-up forecasts. We conducted a six-week speculative design study with individuals …
Social media to understand the endometriosis patient journey: Listening to influences driving treatment choices.
Previous research has identified treatment attributes and outcomes for endometriosis patients, highlighting the need for tailored interventions to improve patient care. These studies emphasize the need to understand patient experiences, …
Development of the COMPASS model of endometriosis: A COmprehensive model of pain encompassing agency, systemic factors and sense making.
Endometriosis is a chronic and progressive condition commonly associated with debilitating pain. Treatments for endometriosis pain are limited and usually invasive. Psychological interventions are a non-invasive intervention option and have …