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Insights from focus groups with trans and gender-diverse people with endometriosis: stories you tell, stories you don't.

Endometriosis is a chronic condition characterised by cyclic pain symptoms that often significantly affect health-related quality of life. Predominantly framed as a "woman's condition," current research overlooks the experiences of …

Published: Sept. 17, 2025, midnight
The Voice of Endo: Leveraging Speech for an Intelligent System That Can Forecast Illness Flare-ups.

Managing complex chronic illness is challenging due to its unpredictability. This paper explores the potential of voice for automated flare-up forecasts. We conducted a six-week speculative design study with individuals …

Published: April 25, 2025, midnight
Missing and dismissing the impact of periods. Outcomes of focus groups of teens with period concerns.

Despite a high prevalence, menstrual issues are often normalised or trivialised and undermanaged in young people (YP). Uncontrolled dysmenorrhoea and heavy menstrual bleeding have a vastly negative impact on the …

Published: Dec. 12, 2024, midnight
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